Tuesday, March 7
A week ago I experienced walking well as I’d not done in years. Today, I could barely walk at all. I’m sure there are brain reasons for this kind of random progress, but I find it difficult to adjust. Movement in general today was reluctant to an extreme. I may have been limp all day, I’m not sure. I know it wasn’t rigidity I suffered, nor frozen action, but it was close enough to PD to seem threatening. The evening walk was smoother than the morning. Connections with people on the street were marvelous beyond description.
Wednesday, March 8
My father was diagnosed with Parkinson’s in 1983, and the drugs stopped working in June of 1986. I was in Williamsburg at Virginia Shakespeare Festival that summer, so was not able to make it back to California until September. But I shouldn’t have worried, my parents discovered a better remedy; Certs breath mints, preferably the wintergreen, as I recall. They worked, too – for a time.
“…some people with PD who are convinced that some vitamin or supplement will cure Parkinson’s might see their problematic symptoms completely go away in response to the vitamins or supplements – until they have some new life crisis or indulge in a negative thought.” (from Stuck on Pause by Janice Hadlock)
Thursday, March 9
After five good hours of sound sleep, I suddenly woke with fifteen legs, each wanting to go its own way. After several attempts at rearrangement, I removed myself from bed to try the usual tricks, but none worked. Roman arrived in the midst of these efforts, and distracted me with the morning rituals, including breakfast – which today featured for the first time a sugar-covered donut. Given that I was too wasted to walk or row, and neither bed nor recliner offered any comfort, we opted for the vibrating chair, usually a safe bet so long as I have help in and out of it. Today, after only a few minutes my repose was ruined by a particularly strong form of RLS, which I tolerated for awhile. When it crossed the line into super annoying, I called for Roman. No answer. He’d gone shopping. I learned a lot about sucking it up and dealing.
When Roman returned, we decided to try the recliner. Miraculously, there was no RLS and I slept for two hours. Roman claims that my snoring caused Roberto’s dogs one floor down to bark.
I try to apply the principles described in the Recovery literature, as to why stuff happens, but usually feel that I come up short. Friend tells me that if there is something I really need to do or pay attention to, that he will tell me. Otherwise, observe, relax, enjoy the journey. Even when the waters are rough.
Friday, March 10
In Scranton, my favorite forms of exercise were walking and swimming, but for those mornings I could not make it to the pool, I purchased a rower. When I moved to Orvieto, I left almost everything behind. A few months ago, I was suddenly possessed of the idea that rowing would be good for me, so I ordered the same model that I had in Scranton. The first day I used it, I was able to do fifteen minutes of full-bore rowing without pauses or slowdowns. Since that first time, I can barely do six minutes with structured light periods. This particular health adventure of recovery from PD defies logic, and as crazy as I am, I still rather foolishly expect logic to prevail. Of course there is a logic to it all, just not one my brain can wrap itself easily around.
Saturday, March 11
A local hotel that is upgrading under new ownership donated eighty beds, with bedding, to Ukrainian relief efforts, and Roman took on its planning and organization. Then the huge delivery truck showed up a day ahead of schedule. The beds had to be shuttled from the old town to the truck parked in a lower suburb, so yesterday Roman left suddenly after Iryna arrived to untangle all the now chaotic remnants of formerly perfect order. It all worked out fine – and this morning he was jubilant – but the day began late so I wasn’t able to walk.
The rest of the day, whatever walking I did at home was subtly improved. Taking that out to the sagrato, this evening, was a challenge but not a failure.
Sunday, March 12
Was up and down all night. Finally, at 06:00 I took a tiny dose of Medinait and slept until Natalie woke me at 09:30. The result has been a day of extreme poverty of movement. Add to that a painful callous on the bottom of my right big toe, and walking was practically impossible. That is all.
Monday, March 13
Another spotty night. Consequently, I napped a couple of times today, but naps have lost their zombie sting. For now. And I didn’t have one serious incident of RLS. For today. I’m going to try to resist reporting incidents as trends. At least try.
I feel good! Walking, typing, and sleeping are unpredictable, but I have been able to read in comfort. Of late.